Blog

My friend Leslie and her daughter arrived on Thursday from Long Island to take me, (feels more like rescue me after this week) from Boston and bring me home.

This has been a hard week, both emotionally and physically. I feel sicker this week than I did last, and the novelty of the travel back and forth has worn off. I like Boston, and I love seeing all my friends, but I miss my ...

Got together for lunch with two longtime friends from college today. We all went to school at BU. They stayed here, I went back to New York. It was great to see them, it had been a while since we all sat together eating lunch…the dining digs were definitely more upscale than back then, the conversation topics were different, what we ate was different…back then it was more like a Greek Pizza and ...

Don’t know which is more tiring,…Mondays, when I travel and radiate on the same day, or Tuesdays,…the day after I travel and radiate. There is something about the day after Mondays, that feels like a hangover…sort of a delayed reaction to all the schlepping which is really draining. Tuesdays are starting to feel like a day to just slog through…I really need to take it easy on Tuesdays.

My friend Joe came today, he ...

I don’t know which is harder…having radiation or traveling to Boston on Mondays and then having radiation. After a long weekend, and just starting to feel a bit less worn out, it’s time to hit the road again. This time I’m not driving, I’m training. Jon drives me to the Amtrak station in New Rochelle so that I don’t have to hassle with the Long Island Rail Road that I would need ...

It’s been a long week for a short week. The heat, the scheduling changes, the crowded waiting room, because of the scheduling changes, the traffic coming up to Boston, all the people that are in Boston for some genuine Independence Day fun,…I just feel worn out, and I’m ready to go home.

Jamie and I get to Proton Center at 8:30A, my scheduled time, but do you think they’re on time? Nope, that’s right, they’re ...

Don’t know what it is about today, but I felt really crappy. Don’t know if I did too much yesterday, or that it’s the cumulative effect of the radiation; but starting last night I was feeling bad and sad (they often go together). My tongue felt weird, my head hurt, and I felt like I had a fever. I woke up feeling not as bad, took it easy (okay maybe not that easy, ...

Proton Center is down again. At Noon I received a call asking me if I could reschedule my 4:30P Proton session to a 3:30P Photon (conventional) radiation treatment. Is this really a question, or more like a redirection with a please? They say jump, I jump; it’s the whole reason I’m here, I’ll do whatever I need to do.

Jamie and I decide to visit the New England Aquarium (just a short ...

Jamie and I set out at 10:30A for a 4:30P Proton appointment, on what usually is about a three and half hour ride form Port Washington, NY to Boston, MA. What do they say “best laid plans”? Instead it turned out be a five and half hour ride, we got into Boston at about 4P. It wasn’t like this last week, maybe it was because of the holiday coming up, but it ...

What can I say…I was really glad to get home, and then it was Sunday.

I felt strong enough to go to my 8A yoga class on Saturday…very happy about that. We created a healing circle, and then my yogamates asked me how I was doing. I said that I was feeling okay and that I had just completed my first week of radiation. The group clapped and congratulated me as if I ...

10:15A on Friday was my fifth treatment, but only my second one at the Proton Center. It seemed like I was just there. I was, I had been there at 5P yesterday. We arrived on time but had to wait about a half hour before I was able to slip into the mask (it’s too early for me to start disliking this mask, but I do…got to work on that). Can ...