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Day Twenty-Two, Best Laid Plans

Got a call from Proton Center at 9:30A to let me know that the Proton machine is down, could I get to Photon at 10A? I was actually sleeping when they called (that’s what I am supposed to be doing according to my doctor…resting), and no way was I going to be able to make it over there in a half hour. Second choice please? They tell me that they have an ...

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Day Twenty-One

The locksmith called at 10:45…”could I meet him at the apartment building in a half an hour?” That seemed like a no-brainer. ”No problem” I said, “and while you’re changing the locks, I’ll wait at the Starbucks”. I packed my laptop and about 15 minutes later we (me and my laptop), are off to the apartment. It’s a quick jaunt or so I thought. This short six block walk with my laptop ...

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Day Twenty

This is the best ceiling ever. Over the last 18 years since I had my first surgery in 1990, I have stared at many ceilings. Some ceilings cracked, some not, different colors, acoustic tile, fans, beams, moldings, air-conditioner vents, recessed lighting, all different types of lighting fixtures. I’ve thought about taking pictures of all the ceilings that I ‘ve had to stare at over the years…thought it would make a funny ...

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Day Nineteen…Oh those keys!

I walk up to the third floor, walk down to the ground floor, walk to Proton, walk back, shop, unpack, travel to and from Boston, and radiate…. this is what I do.

My doctor told me after my session on Friday, that I may be doing too much, that I should consider staying in Boston on the weekend…that the traveling may be contributing to my exhaustion and my general state of unwellness…that what I’m going ...

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Day Eighteen…only Seventeen more to go

I’ve peaked,…I’m able to look over the mountain and see the other side. It’s downhill from this point on; from now on I will have completed more Proton sessions than I have left to complete. On the other side of the mountain, I’ve found my energy. Knowing I have less distance to go than I’ve already traveled has renewed me. I even feel slightly less sick today, don’t know if it’s ...

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Day Seventeen

Today was my worst day yet. Today was the first day since I’ve started Proton Therapy that I found myself wondering if I could make the walk to the hospital. It’s three/four blocks away and yet it may as well be a mile. Three/four weeks ago, three/four blocks was nothing. The only thought that rallies my spirit is that Mr. Dubenschmeimer must be feeling as lousy as I’m feeling.

My friend Eve ...

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Day Sixteen…A Day to Drink

I’m thinking as hard as Mondays are, Tuesdays are the hardest days. Even though Monday is a travel and radiate day, I’m coming off Sunday, which is a day of resting, and relaxing in my own home, which does make it a bit easier. On Tuesdays I feel sick because I’m lonely, and lonely because I’m sick. I have friends that are with me, and who visit…it’s not about that, it’s about not ...

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Day 15

Oh boy, it’s radiation/traveling Monday again. My friend Lauren has volunteered for service this morning. My appointment at Proton isn’t until 6:10P, that’s the latest its ever been, and I’m going to take advantage of this by deciding to leave home a bit later in the morning. Lauren and I leave at 11A. I’ve only known Lauren for a year or so, but she’s one of those friends you meet ...

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Weekend Three…the Magical Slurpee!

I’m not a soda drinker. I never took the Pepsi Challenge,…I haven’t tapped into “The Real Thing”. I never got hooked on the high caloric, high caffeine, low nutritional value soda experience. I guess somewhere along the line I decided to grab that experience elsewhere.

When I got home this weekend, I was feeling the way I had all week, like I had been on the high seas in a small boat…no land ...

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