Category: Uncategorized

It’s still my intention to walk the 227 plus miles from my house to Mass General Hospital this June; that is of course once I create my Non Profit Organization (which I find out takes time…lots of time), fill out paperwork to attract and attach various sponsors, contact sponsors and wait for them to call […]

August 11th was one year from the last day I had radiation. Last year was the year I was sick, this year has been the year of recovery, and this next year is the year I’m moving forward. I can feel it. Last year at this time I could hardly walk the two blocks to […]

From Here to There and Back, to There and Back, to Hell and Back, Back and Forth, to Here and Back Again, It’s a Rough Road, Long and Winding Road, Road to Nowhere, Let’s Get on the Road, Hit the Road, Road Warrior, Walk until you Drop, He Who Limps Is Still Walking, Walk This […]

My hope was that I would be able to start writing this blog again from the anniversary of the first day of radiation last year (that would have been June 23rd) through to the last day of radiation (August 11th), to see what a difference a year makes. Well, much of like what I’ve planned […]

Lesson 11 Over my 19 years as a patient, I have had a doctor strangely come to my bedside and cry, I had another only return my calls at 11:30 at night, another told me we would be seeing each for the rest of my life, only to then have a follow up conversation with […]

To those looking from the outside in, my story may seem to be a survival story…and it is, but it’s much more. My story is also a success story. A survivor is someone who continues to live or exist despite an ordeal or circumstances. A success story is having a positive outcome. We mostly hear […]

Last Thursday, almost seven months to the day that I had completed my last radiation treatment, Jon and I headed to Boston for my six-month (more like seven-month) follow up. What we were hoping to hear was that there had been no tumor growth in that time. The months in between radiation and now have […]

“Our expectations were too high”. “It was better than we expected.” “It’s not everything I expected it to be”. “It went beyond my expectations”. Then there is Expectation’s brother “counting on”. “I counted on you being there”. “Don’t count on me”, or the opposite “count me in”. During this summer when I was driving back […]

In the poem “If” by Rudyard Kipling, there is this line…”If you wait and not be tired by waiting… yours is the Earth and everything that’s in it”. And so I wait. It’s been a month since my last radiation treatment. I feel better than I felt a month ago, but I have a ways […]

Before I had surgery last October, my voice sounded like Minnie Mouse, and I felt as though I spoke a bit like Elmer Fudd. I had difficulty swallowing which made every meal an adventure. Seven months after surgery I felt as though I had made quite a bit of improvement. I knew that the tumor […]