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“The participant’s perspectives are clouded while the bystander’s views are clear.” -Chinese Proverb

Loss is familiar, loss is current, recently near where I live due to Storm Sandy people lost their power, people lost their trees, people lost their furniture, people lost their pictures, their blankets, their memorabilia.  Kids lost their toys, their bicycles.  Many pets have been displaced and some have been lost…lost forever.  People have died.  The incredible relativity of life.  We lose our money, we lose ...

I was just at Mass. General for my annual check-up, and after what has been a tumultuous couple of months, filled with speculation that an ear infection that may have been something much worse, I found out I had no tumor growth since last year.  This is great news for me. This is news my husband and I hope to hear as we get our things together, leave our instructions for our pets, tell our kids what to do, and ...

Maybe it’s just because I’m not as impervious as I should be…as I need to be…as I usually am because these past few weeks I’ve been dealing with an earache, not just any earache-of course not.  If there’s anything I seem to have a knack for, it seems to be not getting the usual run of the mill physical ailments.  I get the unusual ailments.  This earache is due apparently to an infection in the bone of my ear, this ...

Almost all of us remember our birthdays, some us at a certain age forget when they are, some of us at a certain age want to forget when they are, some of us because of a certain kind of forgetfulness, forget when they are, but most of us…remember our birthdays, and we like it when other people remember them…most of us like that.  We remember other days too…those days are different for every one of us, although we share some ...

When I was first diagnosed with a brain tumor over 21 years ago, it wasn’t something I had heard a lot about.  Generally, if you heard about someone else you knew being diagnosed with a brain tumor, it wasn’t something you heard much more about afterwards because that person wasn’t given much of a positive outcome, and didn’t live much beyond your hearing this dreadful news.  As a patient, it was quite like this “we’re sorry to have to tell ...

A few weeks ago, Chris Collora from Patch.com in my hometown of Port Washington, NY, called to do a follow up story on the Walking Miles 4 Brain Matters. I have to put a shout out to Chris and Patch, they’ve been very supportive to Brain Matters, and to all that we’re trying to do to raise awareness for the cause.  I met Chris around this time last year, which was several months before the walk started in October. I ...

Truly it can be in the way one chooses to look at things.  I recently had the intention of participating in a local Brain Tumor Support Group, I instead sauntered in to the Aneurysm Support Group-I had no idea that this was the case until after I had spent a significant amount of time at the group.  I arrived on time, but when I arrived the group was already seated and had already started talking…it was a group of about ...

I just had a moment, more than a moment, a weekend really, where I thought I had lost my blog.  This blog is a compilation of stories and thoughts that I’ve written over the last four years…four very intense, life changing years.  I have of course saved most of these stories-these words, but the thought of them no longer being out there for other people to read if they wanted to read them made me feel as though part of ...

I haven’t blogged in a while, but this seemed like a story worth writing about…there are just those moments that you feel should be committed to paper…or whatever it’s called that we’re writing on these days that seems paper-like.

I was meeting my friend Lisa for lunch a couple of days ago, she and I have known each other for close to twenty-five years.  She and I knew each other before I had my first daughter, before I was diagnosed with ...

When I was speaking at Fairfield Ludlowe High School yesterday one of the students asked me how I thought what I’ve been through had changed me?  This of course is a huge question.  It would take almost an entire class to answer just this question.  But I think if I had had the time to think about it beforehand, the way I’ve had since he asked, I would say that it has given me the understanding of the power of ...